• RebekahWSD@lemmy.world
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    5 days ago

    My gastroenterologist had this on the short list of why I was vomiting randomly but 1. It’s not screaming 2. Hot baths didn’t help in the slightest (I wished) and 3. I don’t smoke only eat it.

    Current going plan is cyclical vomiting syndrome. Yaaay.

    • kungen@feddit.nu
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      5 days ago

      I don’t smoke only eat it.

      Why would that make a difference? CHS is caused by cannabis use, not specifically cannabis smoking, no?

      • RebekahWSD@lemmy.world
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        5 days ago

        Well, he seemed to think so. But if so, then the fact I eat like half a 10mg occasionally would also put it well below the use of high.

        • ZombiFrancis@sh.itjust.works
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          5 days ago

          CHS is the doctor’s go-to default for CVS patients if there is ANY cannabinoids detected. They really don’t want to commit to exploring treatment for CVS without ruling out CHS. If cannabis helps with CVS symptoms, and you dont have CHS, it can be struggle.

          • RebekahWSD@lemmy.world
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            4 days ago

            But… when he heard how little I use it, he did go to cyclical vomiting syndrome. I’m using amitryptiline to control it and it’s working quite well?

            He seem more surprised I had read a paper on the subject and then we talked about publishing papers?

            What he wanted to rule out was possibility of other stomach issues like gastritis and cancer so we did an upper endoscopy then went to amitryptiline.

            • ZombiFrancis@sh.itjust.works
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              4 days ago

              That’s good to hear. Two members of my extended family have a CVS diagnosis and dont have CHS. It’s been a struggle.

              Amitryptiline helps with sleep, which is a huge factor for the people in my family.

              All the best.

              • RebekahWSD@lemmy.world
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                4 days ago

                The dosage of amitriptyline is so small it’s only really good for stopping the stomach from vomiting! If it’s meant to help me sleep, the dosage is too low, alas.

    • djsoren19@lemmy.blahaj.zone
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      4 days ago

      Yeah, it’s a hot new thing so it’s definitely getting overprescribed. I got diagnosed with it after some intermittent vomiting with lots of nausea. After the symptoms still persisted after six months without smoking any, they started to take me a little more seriously. I’ve also known friends who’ve had issues misdiagnosed.

      At this point, it seems like if you’ve smoken marijuana and have any stomach issue, they’ll say it’s CHS

      • RebekahWSD@lemmy.world
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        4 days ago

        I promise, it was just a few lines during my appointment, and he settled on cyclical vomiting syndrome even quicker ;_;

        The questions were like, “Do you smoke? No? Do hot baths help? No? Oh you’ve heard of it! You read a paper? Oh I mostly do papers blah blah blah” then he asked more questions and it was just “Yeah you almost undoubtedly have cyclical vomiting syndrome, but I want to do an upper endoscopy just to make sure it’s not gastritis or cancer or something horrible. You have textbook definitions of cyclical vomiting syndrome” and when I got home and read them it was like. Yep! Sure fucking do.

        But I get why he asked, cause the two do seem to have a lot of overlapping symptoms.